Research Pillars Clinical Health Systems and Services Social Cultural, Environmental Factors that Affect the Health of Populations Bio

Dr. Holly Etchegary, PhD is an applied health services researcher and GELs scholar whose research program revolves around health decision making and the psychosocial and ethical impacts of inherited conditions. A social scientist by training (Social/Health Psychology), she has content expertise in public attitude research and methods and has conducted numerous studies on general public and patient perceptions of genetics, genomics and cancer. She led the only systematic program of empirical public engagement research on genome sequencing in Newfoundland and Labrador (NL), establishing a public advisory council to inform the implementation of sequencing in NL that began identifying key issues related to patient uptake of sequencing and practical suggestions for consent models, data storage and access of sequence data. She is a founding member of the Public Interest Group on Cancer in NL (founded in 2021) and since its inception in 2014, she is the Patient Engagement lead for NL's CIHR SPOR Support Unit and sits on CIHR’s national patient engagement community of practice. She has expertise in patient-oriented research methods, GELs, and mixed methods for health research generally.