Outaouais

GE3LS: Health Policy Research and Rare Disease

Chair(s)
Larry Lynd
Professor, Pharmaceutical Sciences, UBC
Beth Potter
Associate Professor, Faculty of Medicine, University of Ottawa

Diagnosis and treatment for rare diseases: the need to innovate to enable access.

Larry Lynd
Professor, Pharmaceutical Sciences, UBC

Translational pathways in genomics: challenging the pipeline model to ensure realistic expectations of translational research

Anne-Marie Laberge
Clinical Associate Professor and Researcher, Department of Pediatrics and Department of Laboratory Medicine, CHU Sainte-Justine

Proposals for research on rare diseases in the Quebec Rare Disease Strategy and ELS issues

Gail Ouellette
Director, Regroupement québécois des maladies orphelines/Quebec Coalition of Orphan Diseases, Centre iRARE

Generating evidence to improve care for rare pediatric diseases: research networks and registries

Beth Potter
Associate Professor, Faculty of Medicine, University of Ottawa