Canadian GE3LS* and Health Services and Policy Research Conference

(*Genomics and its Ethical, Environmental, Economic, Legal and Social Implications)

#GenomicsSociety2019 | 16-19 June, 2019 | Fairmont le Château Montebello, Québec

Join us for this exciting and timely conference to explore cutting edge issues in the application of emerging genomics technologies.

The conference will put an emphasis on opportunities and training for Early Career Researchers, as well as the participation of patients and their families.

Conference Co-Chairs:

Beth Potter (University of Ottawa) & Vardit Ravitsky (University of Montreal)


Themes:
  • Whole genome sequencing in clinical practice: implementation challenges
  • Consumer genetics
  • Rare diseases: health services and policy research
  • Human gene editing: ethical, legal, and governance issues
Scientific organizing committee:
  • June Carroll (Mount Sinai)
  • Holly Etchegary (Memorial University)
  • Larry Lynd, Larry (UBC)
  • Yann Joly (McGill)
  • Anne-Marie Laberge (University of Montreal, St Justine Hospital)
  • Maureen Smith (Canadian Organization for Rare Disorders)

Registration Fees

PI/Faculty Member (single accommodation) $1000
The registration fee includes: meeting, accommodations, breakfasts, lunches, coffee breaks.
Post Doc/Trainee/Student (shared accommodation) $500
The registration fee includes: meeting, accommodations breakfasts, lunches, coffee breaks.
Note: single accommodations available at $1000
Full meeting Day Pass (no accommodation) $200
The registration fee includes: meeting (all days) breakfasts, lunches, coffee breaks.
Single Day Pass $100
The registration fee includes: one day of meeting and breakfast, lunch, coffee break.

GE3LS Abstracts

We are now accepting abstracts for oral and poster presentations.

Top trainee abstracts will be selected for awards that cover, registration, accommodations, meals and coffee breaks.

Deadline extended

The abstract submission deadline is March 18, 2019. Abstract selection notifications will be sent by April 1, 2019. Guidelines for submission:

  • Names, positions, and institutional affiliations of authors
  • Title
  • 250 words maximum
  • Whether the submission is for poster or for an oral presentation

Please send your abstract as a Word file to vardit.ravitsky@umontreal.ca with the subject line: 
“Abstract submission GE3LS-HSPR conference”

Speakers

Patients / Caregivers

  • Christine Dagleish (GELS/HSPR conference)
  • Maureen Smith (GELS/HSPR conference)
  • Ian Stedman (joint keynote session)
  • Suzanne White (joint keynote session)

Scientists

  • Dr. Yvonne Bombard – University of Toronto (GELS/HSPR conference)
  • Dr. Nancy Cox – Vanderbilt University (joint keynote session)
  • Dr. Sylvia Metcalfe – University of Melbourne (joint keynote session)
  • Dr. Vardit Ravitsky – Université de Montréal (GELS/HSPR meeting)
  • Dr. Pamela Sankar – University of Pennsylvania (GELS/HSPR meeting)
  • Dr. Ma’n Zawati – McGill University (GELS/HSPR meeting)

The 2019 Canadian GE3LS* and Health Services and Policy Research Conference is proud to be a self-accredited Patients Included event as we are “committed to incorporating the experience of patients as experts in living with their condition while ensuring that they are neither excluded nor exploited.”

*Genomics and its Ethical, Environmental, Economic, Legal and Social Implications

A Patients Included status signifies that the event has satisfied all five criteria as identified in the Patients Included charter as outlined below. For more information on Patients Included, please visit the  website .

  1. Patients or caregivers with experience relevant to the conference’s central theme actively participate in the design and planning of the event, including the selection of themes, topics and speakers.

    • We gratefully acknowledge the contributions of the conference patient advisor, Maureen Smith (Secretary of the Board of Directors, CORD and member of the CIHR Institute of Genetics Planning and Priorities Advisory Committee) to shape the program themes, select speakers, and advise on patient scholarships.

  2. Patients or caregivers with experience of the issues addressed by the event participate in its delivery, and appear in its physical audience.

    • Many sessions, including join keynote sessions will have patient/caregiver speakers presenting. Patient speakers, conference patient advisors, and scholarship recipients are invited to stay for the duration of the conference and attend any session they choose.

  3. Travel and accommodation expenses for patients or caregivers participating in the advertised program are paid in full, in advance. Scholarships are provided by the conference organizers to allow patients or caregivers affected by the relevant issues to attend as delegates.

    • Invited patient speakers, the conference’s patient advisors, and the recipients of patient scholarships will have registration, travel and accommodation expenses paid in full, in advance.

    • All patients, caregivers and family members are eligible to apply for a patient scholarship.

    • Invited patient speakers will be offered an honorarium.

  4. The disability requirements of participants are accommodated. All applicable sessions, breakouts, ancillary meetings, and other program elements are open to patient delegates.

    • The 2019 Canadian GE3LS* and Health Services and Policy Research Conference will be held at the Fairmont Le Château Montebello, which states that it meets all local and provincial accessibility requirements. For more details on the hotel, visit their website.

    • All conference sessions are open to all participants.

    • Access for virtual participants is facilitated, with free streaming video provided online wherever possible.

    • The 2019 Canadian GE3LS* and Health Services and Policy Research Conference will be live-streamed via Webex.

    • The Twitter hashtag #GenomicsSociety2019 will be actively promoted prior to and during the events so that participants, as well as those unable to attend the events, can join the conversation of the presentations, key learnings, and ensuring discussions etc.

    • The conference will request presentation slides from all speakers and post all that are made available on our website for free viewing and downloading.

If you have any questions, please contact Beth Potter (Beth.Potter@uottawa.ca) or Vardit Ravitsky (vardit.ravitsky@umontreal.ca).

Patient Engagement Program

The Patient Engagement Program is designed to:

  • develop, strengthen, and support meaningful two-way partnerships between patients and researchers
  • increase the knowledge and understanding about key issues central to patient-centered healthcare and research

Key Features include:

  • integrating the patient perspective in all aspects of the conference program
  • supporting representatives from patient organizations to attend the conference

Patient Engagement Travel Awards

It is anticipated that funding will be available to support up to 5 awards. The award includes:

  • complimentary registration (non- transferrable), including conference meals and accommodations
  • economy airfare

Partial awards may be available (not including airfare).

APPLICATION TIMELINE

Application Deadline: April 23, 2019

Notification: May 3, 2019

ELIGIBILITY CRITERIA

All applicants who meet the following criteria will be considered for the Patient Engagement Program Travel Awards:

  • represent a registered charity in Canada
  • be affiliated with a patient organization that serves constituents with genetic diseases
  • serve in a leadership role (either in a paid or unpaid capacity) with executive, programmatic, policy, or advocacy responsibility

EVALUATION CRITERIA

Evaluation criteria include:

  • benefit/value to the applicant and the organization they represent
  • contribution to the conference
  • alignment of organization’s goals, activities and overall mission with the vision of the conference

HOW TO APPLY

  1. Please complete the fillable PDF.
  2. A complete application will consist of:
    1. a completed application form
    2. a free form cv (maximum 2 pages)
    3. a letter of reference from a senior executive or board member of the organization (1 page maximum)

Email a copy of the completed application to: Beth Potter, University of Ottawa, bpotter@uottawa.ca

CONTACT INFORMATION

For questions about this initiative, please contact:

Beth Potter, Associate Professor
School of Epidemiology and Public Health, University of Ottawa
bpotter@uottawa.ca