Outaouais

GE3LS : Politique de Recherche en Santé et de Maladie Rare

Chair(s)
Larry Lynd
Professor, Pharmaceutical Sciences, UBC
Beth Potter
Associate Professor, Faculty of Medicine, University of Ottawa

Diagnosis and treatment for rare diseases: the need to innovate to enable access.

Larry Lynd
Professor, Pharmaceutical Sciences, UBC

Translational pathways in genomics: challenging the pipeline model to ensure realistic expectations of translational research

Anne-Marie Laberge
Clinical Associate Professor and Researcher, Department of Pediatrics and Department of Laboratory Medicine, CHU Sainte-Justine

Proposals for research on rare diseases in the Quebec Rare Disease Strategy and ELS issues

Gail Ouellette
Director, Regroupement québécois des maladies orphelines/Quebec Coalition of Orphan Diseases, Centre iRARE

Generating evidence to improve care for rare pediatric diseases: research networks and registries

Beth Potter
Associate Professor, Faculty of Medicine, University of Ottawa